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"It's a huge juicing effort," said Leone. Janson said he has seen a wide range of outcomes in patients, depending on juicing their age and the stage of the disease. While some patients did not show marked juicing improvement after treatment, others gained better control of their head and limbs, and had improved sleep patterns, bowel movements and awareness levels. "What we are seeing is the best effect that we can have," said Leone, considering that the patients have already lost up to 40% of their brain mass. Seeing progress Since her gene therapy treatment one year ago, Ashtyn can now move her head from side to side and even lift her arms and legs in ways she was unable to do before. And her facial expressions have a brightness that wasn't there before, said her nurse, Jacalyn Anderson. Ashtyn has come a long way. "She used to be just a rag doll," said Ashtyn's mother, Arlo Clark-Fellenz. Ashtyn receives physical, occupational and music therapy for up to four days a week at the School for Blind and Visually Impaired Children on Brown Deer Road.
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